Coalition for Pulmonary Fibrosis Celebrates Landmark Year for Awareness, Advocacy, Research

The landmark PFREA was introduced on July 23, 2008 in the U.S. House of Representatives by Rep. Brian Baird (D-WA) and Rep. Mike Castle (R-DE). The PFREA is the first legislation specifically seeking congressional funding for PF research, and would authorize $16 million to create a comprehensive national registry to help in understanding the cause and progression of the disease, which in turn would allow for improved standards of care and accelerated research. The bill also carries provisions to improve public awareness of PF and creates a National PF Advisory Board.